PSP Society of Canada https://pspsocietycanada.ca Sun, 07 Jan 2024 01:48:36 +0000 en hourly 1 https://wordpress.org/?v=5.5.14 Cure PSP Ask the Expert: Gait and Balance Abnormalities with PSP (webinar) https://pspsocietycanada.ca/cure-psp-ask-the-expert-gait-and-balance-abnormalities-with-psp-webinar/ Sun, 07 Jan 2024 01:48:35 +0000 https://pspsocietycanada.ca/?p=1442 more]]> WHEN: January 16, 2024 @ 3:00 pm – 4:00 pm

In this Cure PSP webinar, Dr. Farwa Ali will explore the common patterns and clinical diagnosis of gait and balance abnormalities in progressive supranuclear palsy (PSP). Delving into available treatment and rehabilitative strategies, Dr. Ali will provide valuable insights into current practices and emerging therapies. Additionally, she will encompass the latest technologies employed for diagnosis. There will be time at the end for Dr. Ali to answer questions from viewers. Submit your questions via registration or email to events@curepsp.org.

This webinar will be recorded and will be available on our the Cure PSP YouTube channel following the event. We will email all registrants a link when it’s ready to view.

Registration is free of charge!

REGISTER HERE

About Farwa Ali, MD

Dr. Farwa Ali is a movement disorders specialist and the director of the CurePSP Center of Care at the Mayo Clinic in Rochester. Dr. Ali completed her neurology and movement disorders training at Mayo Clinic. Dr. Ali’s research focuses on gait and balance abnormalities in atypical parkinsonisms, with a focus on PSP. Gait abnormalities have a major impact on quality of life and independence. Her research develops novel ways to measure these abnormalities so that patients can be diagnosed earlier, monitored more effectively, as well as the development of novel treatments.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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PSP Society of Canada to host August 16th, 2023 ASK THE NEUROLOGIST SESSION https://pspsocietycanada.ca/psp-society-of-canada-to-host-august-16th-2023-ask-the-neurologist-session/ Wed, 26 Jul 2023 02:19:30 +0000 https://pspsocietycanada.ca/?p=1407 more]]> Organization to host University Health Network Neurologist remotely to field questions from patients and caregivers

Kingston, ON – Tuesday July 25th, 2023 – Today, The PSP Society of Canada Announced that they will be facilitating their second ASK THE NEUROLOGIST SESSION as part of the upcoming Toronto, ON based remote Support Group meeting. Dr. Carmela Tartaglia, a scientific advisor to the organization will be attending the August 16th session to field questions of a scientific and medical nature. As usual, the session is open to patients, caregivers and others affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD).

Participants are asked to submit their questions in advance at the link below by Friday August 11th, 2023.

SUBMIT QUESTIONS HERE

“We are incredibly fortunate to have Dr. Tartaglia in our corner,” said PSP Society of Canada Vice President Stéphane Hetherington. “Her support of our group’s initiatives gives us the energy and confidence to continue expanding and improving our activities”

Location: Zoom (Remote)
Meeting Link: https://zoom.us/j/92329071770
Date: Wednesday August 16th
Time: 7:30PM EST

Dr. Carmela Tartaglia
Dr. Tartaglia is an Associate Professor and Clinician-Scientist at the University of Toronto. She received her medical degree from McGill University, completed her residency at the University of Western Ontario and did three years of clinical/research fellowship in cognitive/behavioral neurology at the University of California, San Francisco Memory and Aging Center. She maintains a cognitive/behavioral clinic where she sees people with neurodegenerative disease and post-concussion syndrome within the UHN Memory Clinic. Her clinical and research interests lie in neurodegenerative diseases with a focus on frontotemporal lobar degeneration (FTLD) and possible chronic traumatic encephalopathy.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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PSP Awareness Walk & Fundraiser to Take Place in Hamilton, Saturday June 3rd, 2023. https://pspsocietycanada.ca/psp-awareness-walk-fundraiser-to-take-place-in-hamilton-saturday-june-3rd-2023/ Sat, 13 May 2023 12:54:45 +0000 https://pspsocietycanada.ca/?p=1388 more]]> Confederation Beach Park, StoneyCreek, Hamilton to play host to inaugural fundraising event in honour of Capt. Jawed Majeed Qureshy.

Kingston, ON – Saturday May 13th, 2023 – The PSP Society of Canada is happy to support a first ever event of it’s kind. The June 3rd PSP Awareness Walk aims to draw attention to the neurological condition and ultimately, contribute to finding a cure. Organizers invite all to join in their mission of spreading awareness and making a difference in the lives of those affected by PSP.

“I envision a world where PSP is no longer a misdiagnosed, and incurable disorder, but rather one that can be effectively treated or prevented altogether”. Said walk organizer Fariha Qureshy. “Until that day comes, I am committed to raising awareness and advocating for research to find a cure for PSP.”

The PSP Awareness Walk team is a group of volunteers, led by Fariha Qureshy. She put her career on hold to become a full-time caregiver for her father who was diagnosed with PSP. Fariha experienced first hand the challenges presented by the debilitating condition the lack of awareness, especially amongst the medical and care-provider communities. We invite the rare disease and broader community to unite behind Fariha & the walk team on June 3rd, 2023.

Details & Registration:
PSP AWARENESS WALK WEBSITE

Location: Confederation Beach Park, StoneyCreek, Hamilton
Date: Saturday June 3rd, 2023
Start Time: 9:00AM EST

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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Organization to host Canadian Physical Therapist & Neurological Disorder Specialist remotely to field questions from patients and caregivers https://pspsocietycanada.ca/organization-to-host-canadian-physical-therapist-neurological-disorder-specialist-remotely-to-field-questions-from-patients-and-caregivers/ Mon, 02 May 2022 22:40:23 +0000 https://pspsocietycanada.ca/?p=1324 more]]> Organization to host Canadian Physical Therapist & Neurological Disorder Specialist remotely to field questions from patients and caregivers

Kingston, ON – Saturday April 26th, 2022 – Today, The PSP Society of Canada announced that they will be facilitating their first ASK THE PHYSIOTHERAPIST SESSION as part of the next remote Support Group meeting. Kaela Southwell, a scientific advisor to the organization will be attending the Wednesday May 18th session to field questions relating physical therapy as treatment for managing symptoms of PSP, CBD and MSA. The session is open to patients, caregivers and others affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD).

“We are extremely grateful to have Kaela as a friend and advisor to our organization,” said PSP Society of Canada Vice President Stéphane Hetherington. “Her dedication to supporting our physical therapy program is helping people every day”

The PSP Society asks that interested participants register for the free session and SUBMIT THEIR QUESTIONS IN ADVANCE via a short survey available here and through the link in the group details below. Questions will be taken through Sunday April 18th.

Question submission deadline: Thursday May 12th at 12:00am

Please keep in mind that the scope of the session will not include vestibular or ocular therapy interventions

Details:
REGISTRATION & QUESTION SUBMISSION SURVEY

Location: Zoom (Remote)
Meeting Link:  https://us06web.zoom.us/j/92329071770
Date: Wednesday May 18th, 2022
Time: 7:30PM EST

Kaela Southwell, MScPT, BScHK
Kaela is a passionate physiotherapist who is dedicated to providing comprehensive and individualized care to her patients. She completed her Bachelor of Science with specialization in Human Kinetics at the University of Ottawa and her Master of Physical Therapy at the University of Toronto. While at the University of Toronto, she served as President of the Physical Therapy Graduate Student Association and co-founded the Community Philanthropic Committee. She has been awarded the Canadian Physiotherapy Association Leadership Award of Excellence, the Department of Physical Therapy Mountain Challenge Book Prize and the Gordon Cressy Leadership Award from the University of Toronto. She continues to be actively involved in the University of Toronto’s Physical Therapy program by assisting with labs and examinations.

Kaela combines her positivity, experience and passion to help her patients reach their goals, no matter how big or how small. She focuses clinically on both orthopedic and neurological conditions, including stroke, brain injury, and neurological movement disorders (ie. Parkinson’s, PSP, MS, ALS etc). She believes in empowering her clients and working collaboratively to develop individualized and meaningful treatment plans. She is a believer of life-long learning and continues to improve her clinical knowledge and skills with continuing education courses. She has a particular interest in treating ankle, knee, hip and shoulder injuries. She has completed courses in advanced manual therapy, acupuncture, McKenzie method, Bobath, and Neuro-Development Treatment (NDT).

Kaela grew up in Elora, Ontario with three brothers and played high level hockey and lacrosse. Kaela and her husband Dan continue to live an active lifestyle through running, weight training, hiking, hockey and kayaking. She stays connected with the sports community through volunteer work as a hockey coach and sports first responder. Among other events, she has provided medical coverage for the Muskoka Ironman, the Ontario Winter Games and the Canadian Sledge Hockey Championships.

Kaela and her husband Dan took over ownership of Woolwich Physiotherapy in June 2021, and are enjoying every second of their new ownership journey together.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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PSP Society of Canada to host February 16th, 2022 ASK THE NEUROLOGIST SESSION https://pspsocietycanada.ca/psp-society-of-canada-to-host-february-16th-2022-ask-the-neurologist-session/ Sun, 30 Jan 2022 16:01:41 +0000 https://pspsocietycanada.ca/?p=1304 more]]> Organization to host University Health Network Neurologist remotely to field questions from patients and caregivers

Kingston, ON – Sunday January 30th, 2022 – Today, The PSP Society of Canada Announced that they will be facilitating their second ASK THE NEUROLOGIST SESSION as part of the upcoming Toronto, ON based remote Support Group meeting. Dr. Carmela Tartaglia, a scientific advisor to the organization will be attending the February 16th session to field questions of a scientific and medical nature. As usual, the session is open to patients, caregivers and others affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD).

“We are incredibly fortunate to have Dr. Tartaglia in our corner,” said PSP Society of Canada Vice President Stéphane Hetherington. “Her support of our group’s initiatives gives us the energy and confidence to continue expanding and improving our activities”

Location: Zoom (Remote)
Meeting Link: https://zoom.us/j/92329071770
Date: Wednesday February 16th
Time: 7:30PM EST

Dr. Carmela Tartaglia
Dr. Tartaglia is an Associate Professor and Clinician-Scientist at the University of Toronto. She received her medical degree from McGill University, completed her residency at the University of Western Ontario and did three years of clinical/research fellowship in cognitive/behavioral neurology at the University of California, San Francisco Memory and Aging Center. She maintains a cognitive/behavioral clinic where she sees people with neurodegenerative disease and post-concussion syndrome within the UHN Memory Clinic. Her clinical and research interests lie in neurodegenerative diseases with a focus on frontotemporal lobar degeneration (FTLD) and possible chronic traumatic encephalopathy.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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PSP Society of Canada Announces first ASK THE RESEARCHER SESSION https://pspsocietycanada.ca/psp-society-of-canada-announces-first-ask-the-researcher-session/ Thu, 03 Jun 2021 02:16:04 +0000 https://pspsocietycanada.ca/?p=1261 more]]> Organization to host two Scientists & Researchers remotely to address questions from patients and caregivers

Kingston, ON – Wednesday June 2nd, 2021 – Today, The PSP Society of Canada announced that they will be facilitating their first ASK THE RESEARCHER SESSION. Alex Klein; former Vice President of Scientific Affairs for CurePSP and now Investor Relations Lead with UCB Pharmaceuticals and Colin Ewin; Early Research Lead at UCB Pharmaceuticals will be joining us.

“Alex is a long-time friend of the PSP Society of Canada” said PSP
Society of Canada Vice President Stéphane Hetherington. “He and Colin will be offering us valuable insight into the world of clinical trials and
scientific research in the neurodegeneration space.”

The objective of our ASK THE RESEARCHER SESSION is to offer our stakeholders a clear and detailed understanding of how brain research is currently being done, how complex clinical trials are conducted and what important contributions are being made by patients.

As usual, the session is open to patients, caregivers and others affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD).

The PSP Society asks that interested participants register for the free session and SUBMIT THEIR QUESTIONS IN ADVANCE via a short survey available here and through the link in the group details below. Question submissions will be taken through Friday June 11th.

Session Details:
REGISTRATION & QUESTION SUBMISSION SURVEY
Location: Zoom (Remote)
Join Zoom Meeting
https://zoom.us/j/91903688144
Date: Wednesday June 23rd
Time: 4:00PM EST

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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PSP Society of Canada Announces first ASK THE DIETITIAN SESSION https://pspsocietycanada.ca/psp-society-of-canada-announces-first-ask-the-dietitian-session/ Tue, 13 Apr 2021 00:39:13 +0000 https://pspsocietycanada.ca/?p=1241 more]]> Organization to host Canadian Dietitian & Dysphagia Expert remotely to field questions from patients and caregivers

Kingston, ON – Saturday April 12th, 2021 – Today, The PSP Society of Canada announced that they will be facilitating their first ASK THE DIETITIAN SESSION as part of the next remote Support Group meeting. Christine Francis, a scientific advisor to the organization will be attending the April 21st session to field questions relating to swallowing & diet for patients experiencing dysphagia as a symptom of PSP, CBD and MSA. As usual, the session is open to patients, caregivers and others affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD).

“We are incredibly fortunate to have Christine as a trusted resource,” said PSP Society of Canada Vice President Stéphane Hetherington. “Her support of our group’s drive to continue serving those affected by these illnesses is vital to our success”

The PSP Society asks that interested participants register for the session and SUBMIT THEIR QUESTIONS IN ADVANCE via a short survey available here and through the link in the group details below.

Details:
REGISTRATION & QUESTION SUBMISSION SURVEY

Location: Zoom (Remote)
Meeting Link: https://zoom.us/j/92249140900
Date: Wednesday April 21st
Time: 7:30PM EST

Christine Francis, RD, DDEPT
Christine is a Registered Dietitian in good standing with the College of Dietitians of Ontario and is committed to providing evidence-based nutritional information to those she provides care for. She completed her Bachelor of Science in Foods and Nutrition with a Specialization in Nutrition and Dietetics at Brescia University College (an affiliate of Western University), where she graduated on the Dean’s Honour Roll. While studying at Brescia, she was invited to attend the Student Leadership Recognition Event for three consecutive years, where she was acknowledged for her meaningful impacts. Christine continued her education by becoming a distinction graduate of the Diploma in Dietetic Education and Practical Training program also offered at Brescia University College, which consisted of a rigorous, accredited dietetic practicum program at several organizations.

Christine is currently an active member of Dietitians of Canada, including the Gerontology Network and the Dysphagia Assessment and Treatment Network. She continues to further her education by completing online courses and tuning into webinars, specifically aimed at those involved with caring for individuals with dysphagia.

Christine focuses primarily on working with residents in a long-term care environment managed by Extendicare Inc., where she is the sole Registered Dietitian for a 200-bed facility. She is able to improve residents’ experience and quality of life by ensuring that their rights and safety are met through nutrition and hydration. Alongside her interdisciplinary team, Christine successfully implemented the International Dysphagia Diet Standardization Initiative (IDDSI) to ensure the safety of residents with dysphagia.

In addition, Christine runs her own private practice, entitled Christine the RD, where she works collaboratively with clients in the Greater Toronto Area to accomplish desired goals. She aims to assist those she works with to meet their long-term health goals by translating the science of nutrition into realistic, practical, and understandable recommendations. Christine’s social media presence allows her to demonstrate her knowledge of nutrition and health by educating the general public and demystifying misinformation.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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PSP Society of Canada Announces first ASK THE NEUROLOGIST SESSION https://pspsocietycanada.ca/psp-society-of-canada-announces-first-ask-the-neurologist-session/ Sat, 08 Aug 2020 15:33:53 +0000 https://pspsocietycanada.ca/?p=1133 more]]> Organization to host University Health Network Neurologist remotely to field questions from patients and caregivers

Kingston, ON – Saturday August 8th, 2020 – Today, The PSP Society of Canada Announced that they will be facilitating their first ASK THE NEUROLOGIST SESSION as part of the upcoming Toronto, ON based remote Support Group meeting. Dr. Carmela Tartaglia, a scientific advisor to the organization will be attending the August 19th session to field questions more scientific and medical in nature. As usual, the session is open to patients, caregivers and others affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD).

“We are incredibly fortunate to have Dr. Tartaglia in our corner,” said PSP Society of Canada Vice President Stéphane Hetherington. “Her support of our group’s initiatives gives us the energy and confidence to continue expanding and improving our activities”

The PSP Society asks that interested participants register for the session and SUBMIT THEIR QUESTIONS IN ADVANCE via a short survey available here and through the link in the group details below.

Details:
REGISTRATION & QUESTION SUBMISSION SURVEY

Location: Zoom (Remote)
Meeting Link: https://zoom.us/j/92329071770
Date: Wednesday August 19th
Time: 7:30PM EST

Dr. Carmela Tartaglia
Dr. Tartaglia is an Associate Professor and Clinician-Scientist at the University of Toronto. She received her medical degree from McGill University, completed her residency at the University of Western Ontario and did three years of clinical/research fellowship in cognitive/behavioral neurology at the University of California, San Francisco Memory and Aging Center. She maintains a cognitive/behavioral clinic where she sees people with neurodegenerative disease and post-concussion syndrome within the UHN Memory Clinic. Her clinical and research interests lie in neurodegenerative diseases with a focus on frontotemporal lobar degeneration (FTLD) and possible chronic traumatic encephalopathy.

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca

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Research Validates Blood Test for Detecting Tau and Amyloid-B Pathologies https://pspsocietycanada.ca/research-validates-blood-test-for-detecting-tau-and-amyloid-b-pathologies/ Wed, 24 Jun 2020 12:58:46 +0000 https://pspsocietycanada.ca/?p=1041 more]]> An analysis of consolidated data seeking new ways of accelerating Alzheimer’s diagnoses through differentiation from other disorders such as Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD) and Multiple System Atrophy (MSA) has shown promising results.

The data suggest that a blood test for cerebrospinal fluid (CSF) tau phosphorylated at threonine 181 (p-tau181) can be used as a predictor for tau and amyloid-B proteins. Due to the simple nature of the test, it is being touted for its scalability as well as accuracy. Previous means of identifying effective biomarkers for the two pathologies were less available due to cost and invasiveness. They typically involved neuroimaging technologies and spinal fluid tests.

“The strong correlation between plasma p-tau181 and amyloid β PET, together with the increased plasma p-tau181 in amyloid β PET-positive and tau PET-negative (Braak 0) individuals suggests that this new test detects Alzheimer disease type pathology in the very early disease stages” wrote the study authors

The study examined data from 1131 individual patients and was a collaboration between researchers at McGill University’s Translational Neuroimaging Lab in Canada and the Institute of Neuroscience and Physiology at the University of Gothenburg in Sweden.

Plasma p-tau181 as a marker for differentiating Alzheimer’s from PSP or CBD diagnoses was 88.47% effective and 81.90% accurate in distinguishing Alzheimer’s from MSA.

 

Details:

News Provided by:      Neurology Live
Link to release:          Plasma P-Tau181 Biomarker May Be Accessible, Scalable Test for Alzheimer Disease

© 2019 NeurologyLive. Intellisphere, LLC. All Rights Reserved.

 

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca 

Sharing of medical news by the PSP Society of Canada is not intended as advice, support or endorsement for specific studies or outcomes shared.

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MRI Biomarkers Distinguish Progressive Supranuclear Palsy from Idiopathic Normal Pressure Hydrocephalus https://pspsocietycanada.ca/mri-biomarkers-distinguish-progressive-supranuclear-palsy-from-idiopathic-normal-pressure-hydrocephalus/ Tue, 09 Jun 2020 18:04:35 +0000 https://pspsocietycanada.ca/?p=1015 more]]> Kingston — Tuesday June 9th, 2020On May 14th, 2020, MDLinx; an online medical research distributor shared news of a study conducted seeking improved methods of differentiating PSP (Progressive Supranuclear Palsy) and iNPH (Idiopathic Normal Pressure Hydrocephalus) during diagnosis. Historically, the two conditions, which share various clinical and radiological characteristics (Movement impairment & cognitive decline) have been difficult to distinguish from one another.

Using MRI imaging to measure differences in the ventricular enlargement of iNPH and PSP patients demonstrated 98.5% effectiveness in identifying which conditions the study subjects were experiencing. This study included 107 probable PSP patients, 27 iNPH patients and 43 control subjects. Previous methods of differentiation including measuring callosal angle (The corpus callosum is a nerve fiber bundle connecting the right and left hemispheres of the brain) demonstrated a predictive effectiveness of 70% in the same study candidates. © 2020 International Parkinson and Movement Disorder Society

Details:
News Provided by:     MDLinx (Daily medical news. Research and resources for healthcare professionals and patients)
Link to abstract:         Magnetic Resonance Imaging Biomarkers Distinguish Normal Pressure Hydrocephalus From Progressive Supranuclear Palsy

 

The PSP Society of Canada serves patients and families dealing with Progressive Supranuclear Palsy (PSP) and related diseases such as Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD). For more information please visit. www.pspsocietycanada.ca 

Sharing of medical news by the PSP Society of Canada is not intended as advice, support or endorsement for specific studies or outcomes distributed.

 

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